Things I have learned actually help with my endometriosis:
- instant mashed potatoes, for the nausea
- protein coffee drinks, because solid food makes the entire body furious no matter how good it tastes and straight coffee sometimes is just too damn painful-- this way i get actually useful fuel with less pain
- fennel and/or licorice tea, but not mint
- filtered water because i'm allergic to copper and our pipes are copper
- scalding hot baths or hot water bottles, not showers, because this overwhelms my skin nerves and causes temporary elevation in endorphins from the acute pain, relieving pain elsewhere.
- getting hotboxed by other people because I can't consume the devil's lettuce directly in any form for a variety of incredibly annoying reasons -- and i have no idea why secondhand works so well for pain management and google has no answers i've found
- dicyclomine, which is an IBS medication that slightly relaxes smooth muscles in the abdomen, which reduces a SMALL amount of the endo pain
- doxycycline, which is an antibiotic shown in lab studies (petri dishes) and anecdotal self-report evidence to reduce the growth of endometrial lesions
- yoga, but like not in a crunchy white lady way and is helpful only for the wind down symptoms and between-periods pain/inflammation
- avoiding high fat foods, gluten, dairy, and most preservatives-- but not in an anorexia way, like these things actually cause observable worsening of my intestinal problems which aggravates the endo because my internal organs are spackled with that shit
Things that I was told will work that are actually bullshit:
- anti-inflammatory medications-- "endo is an inflammatory condition just reduce your inflammation" go directly to hell, do not pass go, do not collect $2000, you idiot goddamn doctor
- more cardio -- i have endo lesions that grow in my leg muscles, which means that overexercise can cause them to rupture which is fucking excruciating
- opioid pain medications-- this one was a real surprise but i discovered after an unrelated surgery that the medications i was given (The Good Stuff, none of this tylenol+ shit) did nothing at all to cover up my endometriosis pain
- ginger powder, tumeric, pine needle tea, rose hips, chammomile tea, cinnamon, garlic, green tea-- i eat and drink so many fucking plants on a regular basis and they don't do shit for the endo or its peripheral symptoms.
- N-Acetylcysteine, which is a supplement used to treat aspirin overdoses which purportedly helps endometriosis. it does absolutely fuckall.
- weight loss -- when i dropped 100 after the stroke my endo only escalated because weight loss tells the body its in danger which increases your stress hormones. more stress hormones over time means more inflammation and pain.
This month endo is absolutely destroying me. I'm pretty sure I say that every month but holy shit does everything hurt right now.
There are endometriomas growing on my appendix and possibly my kidneys. Not only that but they're also starting to grow inside my vaginal wall and vulva, as endo can travel from the pelvic muscles/ligaments and down the legs, all the way into my upper right thigh. They're definitely growing in places that are too close to my urethra and my clitoral nerves, too, just based on where i'm feeling pain and experiencing other problems.
That's to say nothing of the hormone headache I've had for three days and the unrelenting nausea. The heart palpitations and overall weakness.
I'm really fucking over this. Cure for endo when?